Our Stories

Printer-friendly version

These are our stories. Take a read. Share your own.

Tell Your Story

Jul 9, 2020

I am disabled and live in Toronto. Recently they enacted a mandatory mask by-law. The law says vaguely that people who can't wear masks for medical reasons don't have to, and we don't have to disclose medical info or provide proof. There are no instructions to businesses on what they can and can't do if someone doesn't wear a mask. I can't wear a mask and I'm deeply concerned that I will be harassed and denied service by both staff at stores where I buy necessities, and members of the public. There have already been a couple of confrontations between store staff and people who won't wear masks, and the non-mask wearer was vilified and demonized in the news media. When I heard about this law I immediately stocked up on necessities so I won't have to go out and be hassled. If it happens I will have nobody to turn to, won't be able to call police, and won't be able to complain to anyone. Governments as usual aren't doing anything to accommodate the disabled with their forced mask laws.

May 21, 2020

I have multiple disabilities which are adversely affected by conditions created to counter COVID 19. First of all, I am extremely sensitive to many chemicals in personal care products and in things like fabric softener and disinfectants, etc. I’m really suffering trying to get groceries, medications, etc because of the ubiquitous use of disinfectants sprayed on buggies, door handles, etc. Second point is that I have a great deal of difficulty standing for very long. A few minutes is tolerable at the most. With many businesses I have managed to find times when lineups are shorter and have adjusted accordingly. However, my main problem has been getting service from my bank. I have not seen a lineup shorter than an hour each time I go. This is unacceptable for many people with mobility issues. The banks are trying to force us to use ATMs however this doesn’t work if your transactions are over the limits. My bank has one hour minimum lineups and only one teller working where they used to have maybe 15 minute lineups and 5 or 6 tellers working. They no longer provide a chair to sit in while waiting or at the tellers’ wickets making a trip to the bank next to impossible and unnecessarily stressful. Finally, due to disabilities I have limited energy and sleep later in the morning to allow myself a little time in the evening to contact friends and family when they have free time. Also, it takes me longer to get myself going in the morning due to chronic pain. Getting to the stores by 7am to take advantages of special hours for those with disabilities is impossible! I’d have to wake up at 4:30am to make it. Not to mention trying to arrange for transportation if needed. Once again it seems those of us with disabilities are an afterthought if were even thought of at all.

May 15, 2020

Another week has gone by after 9 weeks in isolation. I've been diagnosed with a chronic illness with no cure and am receiving CPP Disability benefits. Coping was difficult on a normal day and then Covid-19 came into our lives. All of my supports such as physio, osteo, massage etc. were abruptly cut off. I also live alone and so ended up isolating by myself. This lack of support physically and financially as well as the stress and anxiety of the last few months has negated all the progress I had made in my health journey. Because we receive so little in benefits I had to work as much as I could manage last year but I didn't make enough income to qualify for CERB. I've been patiently waiting for some temporary relief from the government to at least help with the higher costs related to the pandemic but I'm losing hope. This is beyond frustrating.

May 14, 2020

Good Afternoon,
I am all for the extra bonus for Seniors during this epidemic but here is my issue, I am on CPP Disability I've worked all my life since I was sixteen, then I had an injury at work about twenty years ago and had to go on disability. I'm sixty three years old, single, have no family and receive $859.60 a month which isn't even a living wage and way below the average cost of living. I've contacted members of Parliament, local & municipal government and have not received any response ... yet.
Everyone seems to be receiving money in Manitoba - Infrastructure, Business, Landlords, Students, Farmers, Seniors, Workers, EI, Social Assistance etc. What about all of us on CPP Disability where are our extra funds to help alliviate expenses - prescriptions, food, homecare etc.
Why do we always fall through the cracks? What happened to "We're All In This Together" - except the disabled? Is there anyway that you could inquire to the powers that be, why people on disability haven't received any extra funding during this pandemic?
Thank You for your time.

Apr 20, 2020

Hello, this is one of many emails I have sent to dso Central West Region
Good morning,
I rang this morning and left a msg. This is the time to support clients and their families, using discretion. The agencies are being accommodated and still being paid to continue to carry out their responsibilities in spite of this pandemic. Supports are in place. Other ministries, organisations, employers etc are. There is no excuse. Again my son is not getting what he needs. He has a right like every other human to be supported during this time and procrastination is not right.

Apr 20, 2020

From the news in January and February, I knew PWD were in trouble. I try not to worry but isolate issues and deal with them individually. That's hard when problems cascade like this.

I have post-polio syndrome, use a wheelchair for mobility with a bit of walking on crutches and have heart disease which is stable with my meds. PPS is mostly muscle weakness, fatigue and more pain as I get older, now 71.

I lost my house cleaner in March, so I had to step up daily disinfecting for about an hour a day. Extra work makes the pain worse: I saw the physiotherapist for new exercises to relieve it plus re-dedicated myself to 30 minutes of NuStep recumbent stepper every 2 days. A morning exercise routine makes the day better but I still have a lot of pain.

I rest in the afternoon and take pain meds. I order groceries online with SuperStore and plan a week ahead. I have a lot of stress since my wife likes to socialize. She leaves when I'm resting and won't say where she's been. I worry she will bring COVID-19 home and I will get sick.

Thankfully I don't worry about money, just plan to spend and act carefully. I make my diners in batches and freeze them. I eat fruits and veggies and avoid snacks except for nuts, berries and dates. Every day is busy with something planned every 1-2 hours. Gardening just started so that's will be fun all summer. I stay positive, Facetime my kids in Ontario plus Facebook contacts with friends and relatives. This too shall pass.

Apr 14, 2020

I hear many stories from people with disabilities living in the community, people who depend on home care and attendant services to stay safe and healthy.
People providing services are showing up at their home without personal protective equipment.
In many areas the supply has dried up, and the scarce resources are sent to hospitals.
We are missing an opportunity to keep people safe and healthy in the community, to avoid hospitalization and to plank the curve of infections.
Home care workers and attendant service providers who bravely continue to provide services to people with disabilities should be prioritized for testing and to receive healthcare the event that they test positive for COVID-19.

Apr 13, 2020

I been watching that Trudeau and ford they mention everyone else the elderly the working people frontline workers low earning people not once in their speeches we get acknowledging I think they really hate disabled people and I have been struggling with been here everyday I am in alot of pain people who are like that makes me so mad count us in

Apr 6, 2020

Day after day at 11 am, I go to watch our Prime Minister speak on TV.
He speaks so well. In many ways, watching him comforts me.
He looks me in the eyes and tells me what's happening.
It's not good - in any way.
But, somehow he breaks all the information down and I feel better having bite size pieces of knowledge fed to me.
Day by day I take it all in.
However, in the last few days, I have started getting an uneasy feeling in the pit of my stomach.
At first it was hard to figure out.
It wasn't the general anxiety that most everyone is feeling.
It was something different.
I spent most of last year working on getting Bill C-81 passed - the Accessible Canada Act.
Now, during this crisis, it was important to see what the Accessible Canada Act really meant to the Government.
What I noticed was that - slowly - interpreters started to be on TV... that was fantastic even if they were late to the stage.
Soon, the TV news shows were even doing clips on the interpreters!
It was great exposure and obviously an incredible important service finally being provided.
And I truly believe having an Accessible Canada Act made that happen.
That felt good.
But at the same time, the Prime Minister in his media conferences, has been outlining the Government's assistance to the people of Canada.
There has been assistance announced for employers, employees, businesses, prisoners, shelters, Indigenous peoples, families, seniors, people who are sick, students and recent grads - all people who need assistance most certainly.
I don't begrudge any of them.
But why hasn't the Prime Minister announced any assistance for people with disabilities?
As the days go on, that uneasy feeling grows.